I am delighted to share with you the video of our group meeting from 11th April. See links at teh bottom of this post –
Our Expert Guest Speakers Was Micahela Burton,
Senior Clinical Audiologist – NHS and Private
Michaela Burton, Senior Audiologist, NHS and private practice presented “Vestibular Rehabilitation Therapy & Self Help Strategies ” . Anyone with a serious or chronic balance condition, will be only too aware of the need to find their way back to a functioning balance system in our own body. Many conditions benefit tremendously from Vestibular Rehabilitation Therapy (VRT), but along with the complexity of so many different types of balance disorders and that we as individuals will have differing symptoms / strengths of symptoms – just knowing what rehabilitation you should undertake and when is a very complex situation that requires consultation with experts.
Another very common but frustrating issue, is when still awaiting a diagnosis or treatment appointments for many many months , the question of :- “What can I do at home regarding vestibular rehabilitation, that might help ? Or will it make me worse ?”
Michaela Burton (20 years plus with the NHS and now running her own private clinic) joined us to share her expert knowledge and help us all understand the vital role Vestibular Rehab plays in our recovery and when it can be most effective and advise on some at home DIY strategies.
After the main presentation was an extensive Q and A session, covering many varied members issues.
Introduction Where we clarified some guiding principles of the group and our meetings. We are not doctors – We are not medically trained or qualified, so we will never seek to advise on treatments or medical matters. Whatever advice or personal experiences are shared, everyone should always consult with their own medical and healthcare experts for the best medical care and advice. We are not a charity – We are not a registered charity, we handle no money, we have no money. We are just people helping people. Positive Only – We are a support group, with the emphasis being upon support, so we encourage everyone to seek the positive in what we discuss, in our members situations and our overall attitude to our mutual challenges. Let us always try to find solutions rather than be dragged down by the problems, and let us always give encouragement and hope to each other. Tolerance & Friendship – The group is for everyone, and we can all seek different things from belonging to this group, but at the very least I hope we will all find some degree of friendship and comfort from meeting and knowing our fellow members. Let us all be tolerant of differences and respect that balance disorders come in many flavours and affect any person in any walk of life and at any age – so we of all groups, should acknowledge and celebrate the variety and differences in our members. Charity Support – The group is supported by the Menieres Society and VeDA as an official support group listed by both of their web sites. We support both charities in their good work for all things related to balance issues. NHS Support – We actively support the wonderful UK NHS system (even though it is the most broken that we ever seen) and we encourage participation by all NHS trusts with our group. –Private medical care – Whilst we wish it was possible for all people with balance conditions to be treated in a timely and effective manner at no charge to the patient, the reality in many countries is that this is not possible. We therefore advocate the use of private high quality consultation and treatment, where affordable and as a necessary alternative to “no treatment”. Together we are stronger.
Do take some time out to watch this brilliant content and please do share it with anyone who may benefit from seeing this video. See Meeting video links below.
Click here to watch on Facebook
Please come and join our group if you feel we can help and don’t wish to face your challenges alone. You are very very welcome.
