Meeting Report – Sat 20th April 2024 on ZOOM

I am delighted to share with you the video of our group meeting from our April 20th 2024 Meeting.  This email contains links to both YouTube and Facebook, to watch this excellent meeting video. 

Our Expert Guest Speakers Were –

Your Fellow Members Sharing their Stories

Links to watch the full meeting video are at the bottom of this page

Introduction Where we clarified some guiding principles of the group and our meetings.  Confidentiality –  As a support group, we encourage all to speak openly about what issues that they face, but as such we ask everyone to respect everyone’s privacy and keep confidential any specific personal matters that are supplied during our meetings We are not doctors   – We are not medically trained or qualified, so we will never seek to advise on treatments or medical matters. Whatever advice or personal experiences are shared, everyone should always consult with their own medical and healthcare experts for the best medical care and advice. We are not a charity  – We are not a registered charity, we handle no money, we have no money. We are just people helping people.   Positive Only  – We are a support group, with the emphasis being upon support, so we encourage everyone to seek the positive in what we discuss, in our members situations and our overall attitude to our mutual challenges. Let us always try to find solutions rather than be dragged down by the problems, and let us always give encouragement and hope to each other. Tolerance & Friendship  – The group is for everyone, and we can all seek different things from belonging to this group, but at the very least I hope we will all find some degree of friendship and comfort from meeting and knowing our fellow members.  Let us all be tolerant of differences and respect that balance disorders come in many flavours and affect any person in any walk of life and at any age – so we of all groups, should acknowledge and celebrate the variety and differences in our members. Charity Support  – The group is supported by the Menieres Society and VeDA as an official support group listed by both of their web sites. We support both charities in their good work for all things related to balance issues.  NHS Support – We actively support the wonderful UK NHS system and encourage participation by all NHS trusts with our group. – Private medical care – Whilst we wish it was possible for all people with balance conditions to be treated in a timely and effective manner at no charge to the patient, the reality in many countries is that this is not possible. We therefore advocate the use of private high quality consultation and treatment, where affordable and as a necessary alternative to “no treatment”.

Three Generous and Brave Members

Shared their own stories with us today of their

own challenges, journey and story so far with a balance condition.

Plus –

Introducing Sarah Burns – NHs Audiologist at Leicester Balance Centre

For any balance condition patients attending Leicester NHS Balance Centre, they will probably not need an introduction to Sarah Burns, who has been an Audiologist now for some 25 years. Sarah has agreed to both give presentations in the future to our group and when possible be on hand at meetings to add a few expert comments – just as she has done with today’s meeting, Thank You Sarah for giving your time and expertise to our members

Plus –

New Research on PPPD – Debbie Cane

Debbie gives a short presentation on some exciting new research at Manchester University on PPPD and is inviting members to participate in this brilliant study. Debbie has presented several times to the group on techniques and advice on how to reduce anxiety and cope with the stress of balance conditions. Debbie is a lecturer/researcher at the University and clinician who treats patients with PPD.

As a support group, we encourage all members, if qualifying, to please participate in any research whenever possible, as if we don’t act to help ourselves and our community , who will?

Do take some time out to watch this brilliant content and please do share it with anyone who may benefit from seeing this video.   See Meeting video links below.

Watch the full meeting now on Face Book or Zoom

Click to watch on YouTube

Click here to watch on Facebook

Please come and join our group if you feel we can help and don’t wish to face your challenges alone.  You are very very welcome. 

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