Meeting Report – Saturday 21st August 2021  on ZOOM

Kimberly Warner – Documentary Producer

“UnFixed – But Not broken”

Keeping on the level: Living well with long-term health conditions.

Links to watch the full meeting video are at the bottom of this page

Introduction Where we clarified some guiding principles of the group and our meetings.  Confidentiality –  As a support group, we encourage all to speak openly about what issues that they face, but as such we ask everyone to respect everyone’s privacy and keep confidential any specific personal matters that are supplied during our meetings We are not doctors   – We are not medically trained or qualified, so we will never seek to advise on treatments or medical matters. Whatever advice or personal experiences are shared, everyone should always consult with their own medical and healthcare experts for the best medical care and advice. We are not a charity  – We are not a registered charity, we handle no money, we have no money. We are just people helping people.  Where we require money to fund leaflets or posters, we approach local companies for them to buy on our behalf. Positive Only  – We are a support group, with the emphasis being upon support, so we encourage everyone to seek the positive in what we discuss, in our members situations and our overall attitude to our mutual challenges. Let us always try to find solutions rather than be dragged down by the problems, and let us always give encouragement and hope to each other. Tolerance & Friendship  – The group is for everyone, and we can all seek different things from belonging to this group, but at the very least I hope we will all find some degree of friendship and comfort from meeting and knowing our fellow members.  Let us all be tolerant of differences and respect that balance disorders come in many flavours and affect any person in any walk of life and at any age – so we of all groups, should acknowledge and celebrate the variety and differences in our members. Charity Support  – The group is supported by the Menieres Society and VeDA as an official support group listed by both of their web sites. We support both charities in their good work for all things related to balance issues. 

Our Expert Guest Speaker  was –  Kimberly Warner

Unfixed – But not broken

Kimberly shared her journey with her own chronic balance disorder, and the daily adversity that led her to a new life of discovery and a sense of purpose.  Using her skills as a documentary maker, Kimberly set about to understand and record others with chronic and life limiting health conditions, how they have learnt to not only live, but thrive in their new lives. 

Recently completing a series of “docu” episodes for VeDA “The Life Rebalanced Chronicles” that features nine vestibular disorder sufferers (including our own Rupal Rajani), Kimberly shared with us her own insight in to how we can all pursue a new purpose, re frame our lives and even become mentors and teachers for others facing adversity in any area of life.

About Kimberly

Kimberly Warner is a film director and producer based in Portland, Oregon, USA. Receiving her degree in Pre-Med and Biology at Colorado College and pursuing her Masters degree at National University of Naturopathic Medicine.

Kimberly has written, shot, directed and edited narrative films, webisodes and corporate and non-profit brand videos. She’s written and directed two of her own narrative short films and both have screened at film festivals globally and garnered numerous awards. 

In 2015, Kimberly developed cervicogenic vertigo and Mal de Débarquement Syndrome (MdDS), an incurable neurological disorder that manifests as a feeling of constant rocking, bobbing and swaying. As months turned to years, her sense of self dissipated as her relationship to her body, her career and her community faded. At forty years young, she watched the rest of the world continue on while she was stuck trying to figure out how to put her pants back on. 

Life On The level says  – This presentation is essential viewing for anyone who is living with a long term balance condition that is significantly affecting the ability to live your life – Kimberly provides some deep insight on this subject.

Relevant links from this presentation

Links to Videos discussed in this meeting

Kimberly’s own site and fabulous videos https://unfixedmedia.com/new-page-2

VeDA’s Episode One Life Rebalanced Chronicles – Produced/Directed by Kimberly https://www.youtube.com/watch?v=yIRiGXavYww

VeDA Chronicles Page https://vestibular.org/life-rebalanced-chronicles-docuseries/

Medical Student Survey on Balance Support Groups – Please help

Reminder That the USA survey on balance support groups is still open and looking for more respondents . Use this link to take part, it takes 5 mins and helps our community https://usc.qualtrics.com/jfe/form/SV_4ZxyrJJdUIxH1lQ

Watch the full meeting now on Face Book or Zoom

Click to watch on YouTube

Click here to watch on Facebook

End of Meeting Notes 

Please come and join us if you feel we can help and don’t wish to face your challenges alone.  You are very very welcome. 

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