What we do

Balance Conditions are potentially devastating, associated with symptoms of severe spinning vertigo and general balance problems, often coupled with on-going tinnitus and damage to hearing. There are also many other causes of serious balance disorders, that can result in life limiting symptoms.

Medical treatment for these issues is slowly developing, but focuses mainly upon resolving the physical symptoms. There is very little available support at a local and practical level for those suffering sometimes life changing illness and the anxiety and anguish that this causes. We are here to offer support, giving comfort to those who need it most.  We focus upon practical ways to help fellow sufferers and we are not a charity or a business, just a group of people facing a common challenge. If you are a suffer, friend or family of a sufferer or feel you can help in any way, please contact us today and join our community support group. Membership has no cost, but your contribution may be priceless to others.

How We Provide Support …..

Simply by being in touch with those who have gone through conditions similar to your own, can provide very positive social and mental support. Understanding that we are not alone, and our challenges are shared by many others, can be very comforting, especially in times of extreme isolation, anxiety and distress. 

Our support environment works through several channels, all encouraging honest and supportive communication.

Support Group Meetings A casual gathering of our group members (and any friends& family) is to allow for meeting, discussion, bonding and sharing of our view of the world. We have Guest Expert speakers at each meeting who may have some professional involvement in our world. Past expert speakers have included ENT Balance consultants, Balance Rehabilitation specialists, and other people of note in the world of balance. The meetings are free to attend, and no member has to attend any, but just come whenever they want to. Members decide what they want to get out of our group and all views are welcome.  Meeting notes and recordings of our guest speakers are always available on our web sit in the Meeting section. 

See some of our members feedback following our meetings :-

“The first meeting was great and very helpful & informative. Lovely to meet people with similar issues”  

“I came there on Saturday morning trying hard to not cry and I left feeling so good, positive and feeling that I’m not on my own.” 

“It might sound over-dramatic, but you really made a huge impact in my life.”

“Your support group is working!.” 

 

 

Balance Buddies Our volunteers, many of whom have first hand experience with various balance disorders, are available for contact by all members. Members can choose to email or call any of our Balance Buddies, especially where they believe a particular Buddy may have relevant balance issue experience to share. Our Buddies are there to help you over the long term in any way that they can. [we are also seeking more volunteers to be Balance Buddies as well please – anyone with experience of or a professional interest in Balance issues, please contact us now]

Member To Member Contact Network   In between group meetings we encourage member to member contact for those who wish to participate in this. name and email address or phone numbers are shared only with other members who have selected to be part of this network. You can then contact as many or as few other members as you wish. This can be very useful to connect to people with very similar symptoms to yourself, or just contact those who live in your area to arrange your own coffee meeting or whatever. It really is good to talk.

FacebookFor many Facebook can be a lifeline, especially if you are house bound and in a rural setting. We simply aim here to allow on-going commentary between members and followers, and allow our community to drive the conversations and topics relevant to giving and receiving local support. Again it is free to follow and free to contribute to.  A Closed Facebook Group is available to Members Only.

Members Activities –  Despite our obvious mobility difficulties, we encourage members to participate in support group activities when able and interested to do so. This can be to help the group raise public awareness, or share their stories of life with a balance disorder.  Participation at what ever level can help to restore confidence and build new friendships.

If you are a suffer, friend or family of a sufferer or feel you can help in any way, please contact us today or join our community support group. Membership has no cost, but your contribution may be priceless

Free Members Key Ring for all new members that attend a first meeting. Your own exclusive “Life on the level” spirit level Key Ring – so we always know that we are “on the level”.

Generously donated by a local business, you can claim your “Life on the level” key ring by joining our support group today. We prefer to give you these in person at your first meeting, but we will in exceptional circumstances (where travel is not possible) post this to you. You never again will have an excuse to not have your life “on the level” 

want to get involved and support us?

Get in touch today if you can offer any help or know people that could help or to let us know of people that desperately need our support