Meeting Report – Sat 11th April 2026 on ZOOM

I am delighted to share with you the video of our group meeting from 11th April.  See links at teh bottom of this post – 

Our Expert Guest Speakers Was Debbie Cane,

MSc CS, Audiology Lecturer and Senior Clinical Scientist.

 

Debbie presented – “Mindfulness and self compassion tools as part of living well with dizziness”. This presentation included some practical participation examples, that you can also enjoy whilst watching this at home. Anyone with a serious or chronic balance condition, will be only too aware of the “mind games”, anxiety, fear, grieving and many other negative emotions that our conditions eventually trigger. These waves of emotions and worries can leave us exhausted, confused and lacking confidence in so many areas of our daily lives. Yet we need strong and clear minds, to understand how best to allow healing and physical progress to happen within our bodies. Debbie Cane will teach you how to bring greater kindness, calm and happiness back into your life – thus allowing you to regain your mental strength and look to escape that sometimes vicious cycle of physical symptoms and mental exhaustion. Debbie has also kindly agreed to take a Question and Answer session after the presentation, where you can ask your own questions regarding your own challenges with finding that “mind” peace and rest. Debbie, a long term supporter and contributor to our group, is a lecturer/researcher at the University of Manchester and clinician who treats patients with Serious Balance Disorders

Introduction Where we clarified some guiding principles of the group and our meetings.  We are not doctors   – We are not medically trained or qualified, so we will never seek to advise on treatments or medical matters. Whatever advice or personal experiences are shared, everyone should always consult with their own medical and healthcare experts for the best medical care and advice. We are not a charity  – We are not a registered charity, we handle no money, we have no money. We are just people helping people.   Positive Only  – We are a support group, with the emphasis being upon support, so we encourage everyone to seek the positive in what we discuss, in our members situations and our overall attitude to our mutual challenges. Let us always try to find solutions rather than be dragged down by the problems, and let us always give encouragement and hope to each other. Tolerance & Friendship  – The group is for everyone, and we can all seek different things from belonging to this group, but at the very least I hope we will all find some degree of friendship and comfort from meeting and knowing our fellow members.  Let us all be tolerant of differences and respect that balance disorders come in many flavours and affect any person in any walk of life and at any age – so we of all groups, should acknowledge and celebrate the variety and differences in our members. Charity Support  – The group is supported by the Menieres Society and VeDA as an official support group listed by both of their web sites. We support both charities in their good work for all things related to balance issues.  NHS Support – We actively support the wonderful UK NHS system (even though it is the most broken that we ever seen) and we encourage participation by all NHS trusts with our group. –Private medical care – Whilst we wish it was possible for all people with balance conditions to be treated in a timely and effective manner at no charge to the patient, the reality in many countries is that this is not possible. We therefore advocate the use of private high quality consultation and treatment, where affordable and as a necessary alternative to “no treatment”. Together we are stronger.

Do take some time out to watch this brilliant content and please do share it with anyone who may benefit from seeing this video.   See Meeting video links below.

 

Click to watch on YouTube

Click here to watch on Facebook

Please come and join our group if you feel we can help and don’t wish to face your challenges alone.  You are very very welcome. 

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