Meeting Report – Saturday 19th June 2021  on ZOOM

Prof Peter Rea Answers Members Questions

Members Survey Results & Amy – a members story

Keeping on the level: Living well with long-term health conditions.

Links to watch the full meeting video are at the bottom of this page

Introduction Where we clarified some guiding principles of the group and our meetings.  Confidentiality –  As a support group, we encourage all to speak openly about what issues that they face, but as such we ask everyone to respect everyone’s privacy and keep confidential any specific personal matters that are supplied during our meetings We are not doctors   – We are not medically trained or qualified, so we will never seek to advise on treatments or medical matters. Whatever advice or personal experiences are shared, everyone should always consult with their own medical and healthcare experts for the best medical care and advice. We are not a charity  – We are not a registered charity, we handle no money, we have no money. We are just people helping people.  Where we require money to fund leaflets or posters, we approach local companies for them to buy on our behalf. Positive Only  – We are a support group, with the emphasis being upon support, so we encourage everyone to seek the positive in what we discuss, in our members situations and our overall attitude to our mutual challenges. Let us always try to find solutions rather than be dragged down by the problems, and let us always give encouragement and hope to each other. Tolerance & Friendship  – The group is for everyone, and we can all seek different things from belonging to this group, but at the very least I hope we will all find some degree of friendship and comfort from meeting and knowing our fellow members.  Let us all be tolerant of differences and respect that balance disorders come in many flavours and affect any person in any walk of life and at any age – so we of all groups, should acknowledge and celebrate the variety and differences in our members. Charity Support  – The group is supported by the Menieres Society and VeDA as an official support group listed by both of their web sites. We support both charities in their good work for all things related to balance issues. 

Our Expert Guest Speaker  was –  Prof Peter Rea

An Update on NHS treatment post Covid & Members Questions

Members Submitted their questions on any aspect of their symptoms, challenges and advice needed – Then answered by one of the world’s leading experts on balance disorder problems and their treatment.  

Life On The level says – Prof Rea has generously responded to our groups report that many members are concerned with the on going lack of treatment and inability to get firm diagnosis in these challenging times. With his up to the minute knowledge of Leicestershire NHS current services and his consummate knowledge and wisdom for all matters regarding balance disorders, Prof Rea is sure to have many key answers to your questions – Don’t miss this rare opportunity to access one of our best medical minds.

Life On The level says  – This presentation is essential viewing for anyone who is living with a long term balance condition and possibly their partners or close family

More About Prof Peter  Rea

Professor Rea is President of the British Society of Otology, Honorary Professor of Balance Medicine at De Montfort University, Honorary Professor to the Departments of Neuroscience and Informatics at the University of Leicester, and was Chairman of the British Society of Neuro-otology from 2013-2019. In addition he has advised on the Covid response for ENT in NHS England. His specialist practice for both ear surgery and dizziness draws patients from all over the UK and further afield.  Prof. Rea is Lead Clinician at The Leicester NHS Balance Centre. He has a state of the art balance investigation suite at The London Road Clinic, along with a dedicated and experienced team. Prof. Rea has appeared in the national press, advised the BBC and has written for major ENT textbooks. He lectures regularly on these topics and runs international medical meetings in both Leicester and London.

Amy – A member shares their story

Amy tells how she was diagnosed with Menieres form the age of eight, and gives an inspiring insight into her strength and fortitude in dealing with balance issues as a young person. A must see story.

Medical Student Survey on Life On  The Level

Jordan, a medical student reported on the results of a recent members survey. showing some interesting trends and information about our members and their approach to our support Group. Jordans work was supervised by Prof Peter Rea. To download a pdf version of the results click on this link below.

Life on the Level – Members Survey Results

Watch the full meeting now on Face Book or Zoom

Click to watch on YouTube

Click here to watch on Facebook

Download Lynnettes slide presentation on the link below

End of Meeting Notes 

Please come and join us if you feel we can help and don’t wish to face your challenges alone.  You are very very welcome. 

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